As parents of children with autism, we already know firsthand the many challenges associated with keeping our kids safe, both in and out of school. The nature of our child’s disorder often presents a wide range of behaviors that can make their safety our full-time job. Wandering/elopement, PICA, choking, water fixations, inability to communicate in an emergency, and general situational fearlessness mark a few of the many things we face (or simply worry about) on a daily basis.
The statistics from the National Autism Association speak for themselves:
- Approximately 48% of children with an ASD attempt to elope from a safe environment, a rate nearly four times higher than their unaffected siblings
- Two in three parents of elopers have experienced a traffic injury “close call”
- More than one-third of ASD children who wander/elope are never or rarely able to communicate their name, address, or phone number
I know how easy it is to become consumed with debilitating fear every time your child is out of your sight. When my daughter, Jenna, was younger, I often felt powerless to protect her – or, to even be able to predict how she would react and respond in any given situation. Now, as she’s approaching 15-years old, I understand that while parents of children with autism have to be exceptionally vigilant at all times, we do have resources and options available to support us in our efforts to keep them keep them safe.
Create Your Safety Plan
Every family has their own safety routines for their child with autism. Over the years, my husband, Jonathan, and I have learned and implemented various tools, tips, and technologies into a cohesive safety plan for Jenna. For example, we know that every time we enter a room, we assess available exits and create a strategy that ensures Jenna is continuously monitored by one of us. We keep a window decal on Jenna’s side of the car that alerts first responders that Jenna is unable to communicate her needs in the event of an accident, and we take photos of her, almost daily, in case she wanders off and we need to tell responders what she was wearing.
Often, parents assume that a 1:1 aide will be able to handle whatever safety issues arise and make modifications on the fly. It is important to be sure that the aide is well trained and equipped to support your child in a variety of emergency situations. Does your child’s aide carry emergency essentials that your child might require (lollipops to stay quiet during lockdown, fidget toys to stay occupied, first aide items)? Has he/she been trained in all safety protocols and equipped to carry them out? Does he/she have keys to the classroom door? What about communication capability (i.e radio, cell phone, office call button, access to the PA system)? Or a wheelchair or “stair chair” to assist in transporting or evacuating your child if necessary?
Other useful resources we’ve incorporated into our safety routines include:
Most parents don’t realize they can have safety goals and emergency plans outlined in their child’s IEP. Always discuss your child’s specific needs with the school administration and Special Education director to put a detailed plan in place.
We use the SafetyNet tracking device to help keep our daughter safe. Worn on a child’s ankle or wrist, this device ensures that should she wander off while wearing the tracker, police/fire department can quickly locate her.
Similarly, many parents use the Life360 app for children who have their own smartphone.
We installed an active alarm system in our home that instantly alerts us whenever a door or window opens. The alarm enables us to respond quickly should Jenna wander off. There are many low tech ways to alarm the doors of your home, from hanging bells to installing individual door alarms that you can find at your local hardware store.
Keep those “kid safety locks” on at all times to ensure your child can’t open the car door while the vehicle is in motion. Yes, you will inevitably inadvertently lock your adult friends in your backseat at some point – they will forgive you.
Partnering with First Responders
Our town offers the Erin Program; a program created specifically for special needs families. Parents create an emergency profile for their child to help first responders in the event of an emergency. All personal information is securely stored and not made public. Contact your local police or fire department to see if your town offers this program or something similar.
No matter how many apps we download or strategies we implement, we will always worry about our children and their safety – as all parents do. However, for parents of children with autism, continuously tapping into the resources available to us can deliver the much-needed peace of mind that we are doing everything we can to advocate for and protect our kids at all times.
Susan Parziale is the Administrative Coordinator for Safe and Sound Schools and lives in Boston.